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Grey's Anatomy Star Reveals Diagnosis of Rare Genetic Disorder

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  Published in Media and Entertainment on Sunday, January 4th 2026 at 13:35 GMT by Entertainment Weekly

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"Grey's Anatomy" Star Steven Weber Bailey Reveals Diagnosis of Rare Genetic Disorder, Now Using a Wheelchair

For over a decade, actor Steven Weber Bailey has been a beloved fixture on television screens as Warren Hastings in the long-running medical drama Grey’s Anatomy. However, behind the familiar face and character lies a deeply personal struggle. In a recent interview with Good Morning America, Bailey publicly revealed he's battling Sacral Agenesis Neuropathy, Terminal (SANT), a rare genetic disorder that has progressively impacted his mobility and now requires him to use a wheelchair. The revelation sheds light on a silent battle waged for years and offers a glimpse into the challenges faced by individuals living with incredibly uncommon conditions.

Understanding SANT: A Rare and Progressive Condition

Sacral Agenesis Neuropathy, Terminal (SANT) is an extremely rare disorder affecting approximately 1 in 50,000 people worldwide. As Bailey explained to GMA, it essentially means he was born without a tailbone and the nerves that connect his spinal cord to his legs are damaged. This damage manifests as progressive weakness and numbness in the lower extremities. The "terminal" aspect of the condition refers to its progressively debilitating nature; symptoms worsen over time, leading to increasing physical limitations.

According to the National Organization for Rare Disorders (NORD), SANT is often caused by mutations in the SKI gene. This gene plays a crucial role in embryonic development and proper nerve formation. While some individuals with SANT experience mild symptoms, others, like Bailey, face significant challenges. The condition can also affect bowel and bladder function, although Bailey has not specifically addressed those aspects of his experience publicly.

A Years-Long Journey of Diagnosis and Adaptation

Bailey’s journey to understanding his condition was lengthy and frustrating. He initially experienced mobility issues as a child but attributed them to clumsiness or sports injuries. The symptoms worsened gradually over the years, with increasing difficulty walking, balance problems, and chronic pain. Doctors initially struggled to pinpoint the cause, leading to misdiagnoses and ineffective treatments.

"It's been quite a journey," Bailey told GMA. "There were times when I felt like I was falling apart." He described feeling immense frustration and isolation as his body changed and he lost function. He credits his wife, actress Sarah Greene, for being an unwavering source of support throughout this difficult period.

The definitive diagnosis of SANT came relatively recently, after years of seeking answers. While a late diagnosis can be disheartening, it now allows Bailey to access specialized care and potentially explore therapies aimed at managing the condition’s progression. He has been undergoing physical therapy to maintain muscle strength and manage pain.

Impact on Grey's Anatomy and Future Plans

Bailey's decision to share his story publicly was driven by a desire for transparency and connection with others facing similar challenges. He hopes that by raising awareness of SANT, he can help advance research into the disorder and provide support for other affected individuals and their families. He also wanted to be open about his current needs on set.

Grey's Anatomy has been incredibly supportive throughout Bailey’s health journey. The show has made adjustments to accommodate his wheelchair, integrating it seamlessly into Warren Hastings’ storyline. While the character’s disability hasn’t been explicitly addressed on screen yet (a deliberate choice for narrative reasons), Bailey expressed gratitude for the production team’s understanding and willingness to adapt. The producers have confirmed they are exploring ways to incorporate the use of a wheelchair into Warren's arc, acknowledging the importance of representing diverse experiences within the show.

Bailey isn’t ready to retire from acting just yet. He remains committed to his craft and is determined to continue working as long as he can. His experience has given him a deeper appreciation for life and a renewed sense of purpose. He emphasized that while using a wheelchair presents new challenges, it hasn't diminished his passion or drive.

A Message of Hope and Resilience

Steven Weber Bailey’s story is one of resilience, perseverance, and the importance of community. His willingness to share his personal struggles has not only brought awareness to a rare genetic disorder but also serves as an inspiration to those facing their own health battles. He hopes that by speaking openly about his experience, he can empower others to seek answers, embrace support, and live fulfilling lives despite adversity. The outpouring of love and support from fans and colleagues following the GMA interview underscores the power of vulnerability and the importance of celebrating human strength in all its forms.

Resources for More Information:

• National Organization for Rare Disorders (NORD): [ https://rarediseases.org/rare-diseases/sacral-agenesis-neuropathy-terminal/ ]
• Good Morning America Interview: [ https://ew.com/greys-anatomy-actor-steven-w-bailey-has-rare-genetic-disorder-now-using-wheelchair-11878777 ]